A wonderful young boy by the name of Samuel Hollywood recently received a new wheelchair to enhance his mobility and independence, however, the Hollywood family still faces critical challenges that require community support through donations.
At just five weeks old, Samuel was diagnosed with Aicardi-Goutières syndrome, a rare disease that has left him severely intellectually and physically disabled. He battles chronic illness and complex medical needs every day which requires full-time care and specialised equipment.
Samuel's mother left her job to become his full-time caregiver, placing financial strain on the family which now relies on a single income.
As Samuel grows, his need for suitable transport becomes more pressing.
Although they have secured a new wheelchair for Samuel, the family now urgently needs a suitable vehicle to transport him safely and comfortably. With three siblings and two parents, a seven-seat vehicle is essential to accommodate the whole family.
The Hollywood family aims to purchase a Kia Carnival van which will be modified to allow Samuel to remain in his wheelchair while traveling. The NDIS covers the cost of these modifications but the initial purchase of the vehicle is a significant financial burden.
Ultimately, the NDIS will not release the modification funds until the vehicle is purchased, thus the urgency.
The Hollywood’s are reaching out for donations to help them secure this critical transportation.
Your generosity will not only provide Samuel with practical transportation but also enable him to access the community, attend medical appointments, therapy sessions and participate in his special kindergarten program.
To donate, please visit gofundme.com and search for ‘support samuels journey to mobility and independence’ or follow ‘Samuels rare life’ on Facebook.
The Hollywood family humbly ask for your generosity to help them secure the means for Samuel to experience the world with greater ease and independence. Photo source: Samuels rare life (Facebook)